- Apofen, Portugal ( association of patients with metabolic diseases)
- BOKS, Belgium (association from people with a metabolic disorder)
- CDG Family Network Inc., U.S.A.
- CDG GlycoKids, Germany
- CDG Society, Denmark
- CDG Society, Spain
- Associação Portuguesa CDG, Portugal
- Leaflet on CDG
© : Hospital Sant Joan de Déu, Barcelona
- PubMed.gov : http://www.ncbi.nlm.nih.gov/sites/entrez >> search for " CDG "
- Informed Consent
This consent model was approved for use by the EUROGLYCANET network